Don't walk the flat roads.
Walk paths that no one has walked before, so that you leave traces and not just dust.

Antoine de Saint-Exupery
Donate your kilometers and join the fight against ALS during our fundraising runs!

#FIGHTALS
#FIGHTALSRUN

Let’s set a sign together!

Challenge 2 DONE!
4.-10.October 2021

Thank you for your support

Advancing research is a matter close to our hearts. Thank you for joining us - we can't do it without you!

Donate your kilometers

Each kilometer brings us closer to our goal!

stay fit & #fightals

2 virtual runs in 2021 & more challenges in 2022. Stay active and make a difference in the fight against ALS!

Donation barometer

Results challenge 2

We are still evaluating and will keep you up to date here and via Facebook / Instagram.

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overall standings

Incredible what we already achieved ❤

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news

Fresh from the press

Donation handover for Challenge 1 (July 14, 2021)

The donation handover took place on July 14, 2021 in the St. Emmeramsmühle in Munich.

Result video of Challenge 1 (21.June-27.June 2021)

https://www.youtube.com/watch?v=lK0zkOQZpFs&t=12s (Clicking on the image automatically redirects you to Youtube)

Press article

Article Schwarzwälder Bote 21.07.2021 – “Geschwister engagieren sich gegen grausame Krankheit” 

Article Schwarzwälder Bote 28.05.2021 – “Mutter erleidet grausames Schicksal”
SZ-28.05.2021
(Click on the image above to view larger or download the article)

Article “Nach dem ALS-Tod von Emmeramsmühle-Wirtin Nina Zacher – Unverhoffter Geldsegen im Biergarten…

auf fedra sayegh pr
auf ganz-muenchen.de

Many thanks to the authors Wolfgang Krokauer from Schwarzwälder Bote and Conny Konzack (Fedra Sayegh PR)!

What is ALS & why the donation run?

ALS?
Amyotrophic lateral sclerosis

ALS stands for amyotrophic lateral sclerosis. ALS affects the nerve cells in the brain and spinal cord. Eventually, patients can no longer control their muscles and they become paralyzed. Most patients die within five years of being diagnosed with the disease. To date, there are no successful forms of therapy, nor are there any cures.

Only together can we accelerate the ALS research, so every donation helps us.
Here🔗 you can read more about its causes, symptoms and effects.

Do your part to help fight  ALS disease!

Become part of an amazing community, donate your kilometers and help us raise funds for ALS research.

Whether you are an experienced competitive runner, hobby runner or casual runner, whether you run alone or in a group, walk or run: every kilometer counts!

 100% of every cent is going to ALS research.

Join us on the journey and
run WITH US IN THE FIGHT AGAINST ALS!

this is only the beginning

Kick-off Run Challenges

Past Challenge #1 – 21.-27. June 2021

We start on Global ALS Day🔗 on June 21st: Run as many miles as you can in a period of 7 days and donate them via Strava(#FightALS.run Club) or manually here via the website.

Challenge #2 – 04.-10. October 2021

Starting on October 6, run as many miles as you can in a period of 7 days and donate your miles via Strava(#FightALS.run Club) or manually here via the website.

#FIGHTALSRUN all thogether

#fightals.Run 2022

For 2022 we are planning a big run where we can all meet personally and run the following distances: 5 km, 10 km, 21 km, 42 km.Afterwards we celebrate our mutual success! More to come …

Register already today and stay up-to-date.

NOTHING runs without support

Our Sponsors & Partners

We are very grateful to our sponsors & partners for their trust and support.

Get the Fightals running package and automatically donate 5€

With our partner Quellen Apotheke Bad Liebenzell, we have put together an exclusive and limited running package from our own production with the best ingredients from the Black Forest for you:

– Liebenzeller liniment with pine oil and arnica – extra strong
– Liebenzell foot balm
– Liebenzeller shower gel – green tea & ginko biloba

Order your package for the special price of 15€ including shipping (to all EU countries).

The difference to the regular price of 20€ will be donated to faceALS.

Simply place your order by sending an email to info@aporegio.net with the promo code: FightALSrun.

Everything that remains unclear should be answered

FAQ

FightALS.run is a fundraising initiative to support ALS research.

We want to run around the world together at least once, collect donations from our sponsors and motivate every runner to donate. The kilometers can be donated via smartwatch or phone via Strava or manual upload.

You are not a runner? You run with us and want to support #FightALSrun beyond that? No problem, there are many ways to support us! You can support us financially (link to donation), but you can also help in other ways:

  1. Share our mission on all social platforms, like Facebook, Instagram, Twitter & spread messages on Whatsapp.
  2. Tell your family, friends & colleagues about #FightALSrun.
  3. Ask your employer to support #FightALSrun.
  4. Use our Facebook profile picture Frame
You have more ideas & contacts, need more visuals or have an ALS story to tell? Feel free to contact us. To contact form

In general, registration is free of charge. However, we are happy to receive a voluntary donation as part of the registration via PayPal or bank transfer. For small donations up to 200€ a bank statement is sufficient for the tax office. For larger donations you will receive a donation receipt from FaceALS, our donation partner. Please contact them directly to receive your donation receipt. More details

The donations go to our partner, the FaceALS Foundation.

Together we want to raise at least 50,000 €.

The donations go to our partner, the faceALS Foundation. The faceALS Foundation emerged from the faceALS initiative, which was established in 2012; the initiators were Dr. Heiko Ott and Prof. Christian Schreiber, Dr. Heiko Ott and Karl-Heinz Zacher. The reason for their immense commitment to research ALS, were the ALS diseases of Nina Zacher and Prof. Schreiber. Until her death in May 2016, Nina Zacher contributed with many appearances on TV and radio to keep ALS in the awareness of the public. In the meantime, the faceALS Foundation is the world's only self-operating foundation in the field of research on amyotrophic lateral sclerosis. The faceALS Foundation has its own laboratories and scientific staff from various disciplines. With 2018, the faceALS Foundation was able to initiate the multicenter clinical study "Detection of ALS-specific toponomes", which should finally enable firm diagnosis of ALS, participants are well-known ALS outpatient clinics from Munich and Ulm.

Since the beginning of 2020, the faceALS Foundation has been planning a monocentric "Proof-of-Concept" study, which is to establish an effective therapy for ALS; the aim is to intervene in the immune system in a modulating way; a so-called "Compassionate Use" has provided very promising data in advance.

The consortium formed by Karl-Heinz Zacher, which consists of partners from science, neurology, transfusion medicine, laboratory diagnostics and technology companies, should enable the rapid implementation of the therapy study.

We use Strava as a tracking app, but you can track your miles however you want. Feel free to use your favorite app.

If you are using Strava, all you need to do is become a member of the FightALS.run Strava Club and we will automatically track your kilometers.

If you are not using Strava, think about creating an account, you can really include all your favorite apps or use the following form to upload your data manually.

You can find the Facebook frame after you follow FightALS.run on Facebook via your profile picture settings or activate it via this link and show the whole world that you are part of a great cause! THANK YOU!

Contact us and we will be happy to provide you with our sponsorship program. To contact form

More questions & suggestions?

Connect with us

We are waiting for your suggestions, questions & most of all your support!

    als team